Hey all
Just wanted to relate to you a story where I was all set to take my big 36' 5ver to LA and have a time in Disneyland and Beaches and 5th Anniversary with my wife... . Well on the week before, I developed Fever, 101-102 all that week and on the day we were supposed to leave, I had difficulty standing and talking when sitting up. . had gotten up to 103+ temp. . went to ER and through tests and such gotten a rare disorder called Guillain-Barre (Barret like the the hat). . this is where the white platelets attack the Peripheral Nerves so you lose muscle control and such... Even breathing... it eats away at the lining of the nerves and makes them not function well.
Well I went down hill a bit from there. . got on an airway, Catheter and transferred to the university of Utah Hospital in the Neuro Critical Care Unit There is a treatment for the disorder by IV a medicine that blocks the Platelets from attacking... After that I started to come around. . on the 8th day i got off airway, by the 12th day I was starting to walk with help. . on the 13th I was transferred to the rehab level and was walking better by the 18th. . Left the Hospital on the 19th day. .
I had an MRI on the 12th and it said along with the Guillan-Barre, I had a mild Left side stroke and a Bickerstaff Brain stem Esephilitis . . Which the latter means my brainstem swelled up a bit and that has screwed up my eyes a bit. . The GB and has attacked my inner ear nerve so I am a little dizzy and my eyes don't track left and right very well and I have double vision. . My right eye puts the same image just to the right or left of my right as they are not synced yet. . so I am on Short term Disibility, my truck is sitting in the drive with 87 gal of Diesel on board and I cant drive it... grrr. .
but I am doing good now,, my strength is ok but my stamina needs work. . the docs say that nerves regenerate at a rate of 1mm/Day so this will be a slow process. . doing rehab to help stamina and balance. Man what an experience!! wouldn't wish it on anybody. . the one silver lining in all this is I have always had borderline high BP. and in the hospital, they found a combination of 3 pills that work well to keep it around 120 or less. . perfect. . so that is good. .
Just wanted to relate to you a story where I was all set to take my big 36' 5ver to LA and have a time in Disneyland and Beaches and 5th Anniversary with my wife... . Well on the week before, I developed Fever, 101-102 all that week and on the day we were supposed to leave, I had difficulty standing and talking when sitting up. . had gotten up to 103+ temp. . went to ER and through tests and such gotten a rare disorder called Guillain-Barre (Barret like the the hat). . this is where the white platelets attack the Peripheral Nerves so you lose muscle control and such... Even breathing... it eats away at the lining of the nerves and makes them not function well.
Well I went down hill a bit from there. . got on an airway, Catheter and transferred to the university of Utah Hospital in the Neuro Critical Care Unit There is a treatment for the disorder by IV a medicine that blocks the Platelets from attacking... After that I started to come around. . on the 8th day i got off airway, by the 12th day I was starting to walk with help. . on the 13th I was transferred to the rehab level and was walking better by the 18th. . Left the Hospital on the 19th day. .
I had an MRI on the 12th and it said along with the Guillan-Barre, I had a mild Left side stroke and a Bickerstaff Brain stem Esephilitis . . Which the latter means my brainstem swelled up a bit and that has screwed up my eyes a bit. . The GB and has attacked my inner ear nerve so I am a little dizzy and my eyes don't track left and right very well and I have double vision. . My right eye puts the same image just to the right or left of my right as they are not synced yet. . so I am on Short term Disibility, my truck is sitting in the drive with 87 gal of Diesel on board and I cant drive it... grrr. .
but I am doing good now,, my strength is ok but my stamina needs work. . the docs say that nerves regenerate at a rate of 1mm/Day so this will be a slow process. . doing rehab to help stamina and balance. Man what an experience!! wouldn't wish it on anybody. . the one silver lining in all this is I have always had borderline high BP. and in the hospital, they found a combination of 3 pills that work well to keep it around 120 or less. . perfect. . so that is good. .