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Heart problem is worse than we thought-wish us luck

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My girlfriend MacKenzie (Mack) is 27 and was diagnosed with a heart condition called ASD, or Atrial Septal Disorder. She found out when she had difficulties breathing and went to see her primary care doctor. This was when she was 21.



Well, first off, ASD is a hole in your heart, to put it bluntly. It lies on the septum where it should have grown closed when born. It is open when in the womb, and closes slowly after birth.



Hers was weak and did not close all the way, leaving her with a 6 or 7 mm hole between her left ventricle and right atrium. She takes medicine (Atenolol) for any arythmia and when she is feeling weak.



She thinks this is the cause of her migraines (which I do not quite understand yet either).



So, in researching this study about closing PFOs, which is a similar condition, but there is no hole, just an overlap of tissue on the septum, she decided to go to the doctor again. He decided a pediatric cardiologist would be best, since they are good at diagnosing kids when they are younger.



He suggested a catheter surgery where the put a button on the hole and close it up, going in through the femoral artery in her groin and into her heart, unscrewing the button from the catheter. Eventually the tissue will grow around it, and the blood clot around it and seal it.



One problem. Yesterday when she was there the doctor did some more intense scans and pictures and found out the hole is not 6 or 7 mm, but 20 mm. He suggests open heart surgery because there may be other holes besides the one. Since her septum is weak it may have torn due to the heart working harder.



It is on the low side of the abnormal heart size. It has been working overtime and gotten larger. The reason she does not have internal bleeding is because its a hole within the heart. All that happens is oxygenated blood mixes with non-oxygenated blood, therefore x-percent of the blood going to her cells is lacking the oxygen, causing her heart to work harder and lack of energy. Short hikes can even make her woozy.



She decided to get a surgery appointment for the 23rd of this month, just do the button for now. She does not want to do the open heart if possible. If she waits at all it could continue to cause her horrible migraines and she has an increased risk of stroke, due to the blood clotting in the heart and traveling to her brain and blocking the vein.



Thanks for reading, I will keep you all updated!
 
Nick, If I can bank some b-pos blood on your behalf here in Portland, i would be happy to! Good luck on the operation. Tim
 
Hey Nick, I hope everything goes well!, I suffer from bad headaches almost once a day and its because of lack of oxygen, Ive been to many doctors and speacialists and for some reason i dont breathe normal. My case and your girlfriends isnt the same but the chain with her bad headaches and oxygen make sense.



Nick
 
heart surgery

I had heart surgery last Sept. first. From my honest perspective, after my quad bypass, she should not fear the proper fix. Heart surgery has a small risk of stroke and death. Very small. The end result is like waking up from surgery with a new life. The feeling of peace, vigor and general good health after heart surgery is wonderful. Please, don't let her take what seems the "easy" way out. Get a second opinion from a hospital that does LOTS of her kind of surgery. Do the right thing once, not the wrong thing once, and right thing a second time. Heart surgery is over rated, and the closing of heart muscle walls is pretty routine stuff.

So, my humble advice: pick a hospital that has lots of experience with the proceedure.

When she is taken in for surgery, she must think positive thoughts. The nurse in OR gave me that advice, explaining that if the patient has positive thoughts, the post op recovery is MUCH easier, as is the whole post op period of a few months. She was absolutely correct!! My recovery has been excellent. (I "talked" to God, and my deceased grandmother). It works.

Please email me if you have any questions, or if I can help in any way. God bless you both.

Ron
 
I agree with ol ron. If you find the right docs and the right facility you should be able to get this fixed with very few problems. I feel the prognosis should be good. Get the surgery done correctly and very soon you should be able to return to a normal life. GOOD LUCK!!!!!!
 
Good luck Mack & Nick. Having recently undergone scary surgery I know all the feelings going on right now. Keep your chin up, get 2nd opinions, and do what the doctors recommend. I know it seems like a never ending road right now but things will get better.
 
I wish your g/f luck on the surgery. She's young and everything will turn out fine I'm sure.



I'd probably faint if I was told I needed heart surgery.
 
Modern medicine can do amazing things these days. My mother died in 1976 of a variety of leukemia that nowadays it is very rare for anyone to die from. Definitely get a second opinion and make sure you do the right thing the first time. As for headaches, I have allergy induced asthma and last week I used a respirator while cutting the grass in my back yard, it didn't give me enough oxygen while exerting myself and about halfway thru I had a horrible headache as well as dizzyness and gasping for breath so if all goes well, which I sincerely hope it does, she may well feel better than she ever has after the recovery from the surgery. Best wishes for a happy and healthy outcome!



Tom
 
Best wishes for a smooth surgery for her, and a speedy recovery. Tell her to go with her gut feeling, she will know what is best for her and to trust her docs - they do miracles every day with the help of God and the best medical technology in the world!
 
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