Perhaps I shouldn't post this until I have 100% clarification, but I do believe that Rob was originally diagnosed with ALS, but then found out through blood tests that he had Lyme disease instead. I know for a fact that Rob had Lyme disease, but I don't know if he also had ALS. People with Lyme disease are often misdiagnosed with having ALS because the symptoms are similar. This is what Rob told me at his February bomb party. He said that it was his dentist that suggested he have a blood test done for Lyme disease. There is some certain test where they look at the blood under a microscope to verify the existance of the disease. Rob had been dealing with the Mayo Clinic, and they didn't want to do this test, so he had some blood shipped to some lab in Florida, and they found the disease. Rob later told me in an e-mail that he later got to look at his blood sample under a microscope, and he could see these little worms crawling around. Lyme disease is cured by using some very powerful antibiotics, and Rob said at his party that most of the time, if it is caught early enough, patients make a 100% recovery. At his party in February, Rob was very optimistic that he'd recover. But, apparantly, by the time he began the proper treatment once the disease had been diagnosed, the disease had caused too much damage to his system.
I learned a bit about Lyme disease from talking to Rob. Here are two things to remember and keep in mind for yourselves and your families:
1. Most of the time, when you hear about Lyme disease, they say it's from getting bit by deer ticks. It has been proven that you can also get Lyme disease from mosquito bites and other insect bites, too.
2. The symptoms of Lyme disease mimic the symptoms of ALS and other diseases, so it is often misdiagnosed. According to what Rob told me, the only way to properly check for the disease is to have a lab look at the blood under a microscope.
Andy