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ToolManTimTaylor... PLEASE say a prayer!

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She is transported to a nearby level 4 infant intensive / trauma center unit. I suddenly remember how to outdrive Mario andretti. I look at amy and we telepathicly knew what i must do.



Off I go. Upon arrival I find my baby girl in an incubal unit with wires ,tubes and her little baby elephant toy my daughter gave her just a few short hours ago. I was greeted by a team of seurgons and the anomolies explained in a OR breifing room.



She has two anomolies that happen in one out of every 5000 births. Life threatening indeed but crrectable. This process requires immediate major surgery. 7. 5 hours come to find out. Her esophogus had made an incomplete and alternative connection. She was breathing but with every breath drawn the intestinal tract was being pressurised and stomach gasses and acids can and will find their way into her lungs. First proceedure required disconnecting esophogus and making a proper stomach connection.



The second anomoly was present. Her lower intestinal tract was incomplete. Incomplete just after the colon. They need to do an emergency colostomy. Being a newborn only a few hours old this is of course off the chart in risk. Again Tim feels lifeless and I do not hear any words . . just mouths moving. They start a major IV called a Pic line



(I myself have had a Broviac cathedor installed when I was eight. A broviac is an IV inserted thru the juggular into your aortic artery>) That was option # 2 Both of which have staying power (much longer than 3 days with standard IV needle style) But they needed scans to find out which to go with due to where the esophogal anomoly is locted. A Pic lin is an IV that is sent in thru anothe main vein the same way just a different locatio like arm , or leg.



She is stabilized and I bring her down to he O. R with th attending Floor nurse @ 9:07 a. M sunday Morning (Still awake from thursday and) The handoff is complete. An emotional mes I wear a grove in the commecrical tile before I was convinced by my father in law to go to the cafe to get some food and rest. Food I did rest not.



While pacing for the next 6. 5 hours I get the greeting I was hoping for for what seemed like an eternitty.
 
The head seurgon had come in to the O. R Debreifing room to find me an inch or so shorter as I wore the soles of my shoes just about clean off and sat me down.



Both opperations were a success ... HOWEVER ... We still have a few to go. The life threatening proceedures that needed to be corrected have been. Meaning:



Esophogeal tract was disconnected from the bronchial tract and a connection made to her stomach. The danger from asperation or stomach fluids entering her lungs have been reduced but not eliminated until the healing proceess is complete (A week in the ICU)



Her colon and intestinal tract disconnected and colostomy complete. The danger of Toximia (Fecal matter entering the bloodstream) is now eliminated.



Wow I suddenly remember the whole english language and can once perform some of life's major functions again. But not all.



She is going to be in the hospital for quite some time as there is more surgery needed. The second phase is to reconstruct a passage from the colon on out. However to do this she needs to develop more for about 6 months as her muscle walls and fibers need to become stronger in order for the proceedure to be able to begin. After 6 months the reconstruction can take place and will of course need to heal before reconnecting the intestinal tract a few short months after... ... ...
 
I am blessed for a couple reasons. I am faced with a few very tough decisions UP front and NOW in my face. Why am I blessed with theese? Theese are things that can be fixed ... and fixed NOW. Just a few short number of years ago nobody knew about theese anomolies until ... well until it was too late. Theese are not long term dabilitating things . . for this I am thankfull.



The decisions I must face now with risk , responsibility , and above all resolve are ones that can be dealt with and dealt with early in her life and our lives together as a family. Childeren with theese anomolies go on to lead perfect natural lives ... this is just one of life's Toll Booths. It is not anything I did Nor Amy before during aor even after the pregnancy as it is not genettic. It is just a set of anomolies that occur and human geene splicing goes on in infinite numbers. Sometimes they code differently. Why . . science does not know all the do know is that it happens at randum but faithfull patterns in about 5000 registered births.



For some reading and help I have researched this rare complexity called VACTERL which is an acronym for theese set of anomolies. As I become more aware and learn more about it I can most certainly fill you in.



Look I cannot express the thanks I want to give to all of you for being here and part of what I consider to be the best website and group of friends out there. Amy and I do thany everyone for your support and I must draw this write up to a close and I need to go back into the ICU to check up on my baby Girl!

Will keep ya posted!



TMTT- Dad again
 
Wow, heart wrenching account. It is so great to hear that the worst is behind. Thank god for modern medicine and the strength of love.



Continued prayers for your daughter,

Greg
 
Tim, If you need ANYTHING CALL ME!!! wash the toilet, clean the catbox, Give rides, shovel snow (yeah right :-laf ) WHATEVER, you know how to get in touch with me!
 
Heart wrenching doesnt even describe it. WOW--- our prayers are continued. Same offer here,if you need it --please ask. Dave and Michelle
 
Tim, after seeing you drive at IRP, I can only immagine why you never got pulled over on your drives. The police couldn't catch ya... . who says nothing is faster than motorolla!



Keep us updated buddy. We are ALL here pulling for you and yours.



If you need anything cold from the great state of Minnesnowda, just ask, and it'll be on it's way.



JP
 
Just got back.

Just got back!



Things are progressing well. We got to see her tonite in her "Popemobille" style ICu crib. Tough as ever lovin' nails looking at your newborn thru the mass array of breathing apperatus , IV's , Drainage tubes , Monitors and tape along with a host of gauze in a clear hard plastic sealed shell. Quickly I was able to see thru all of that as if it wasn't there. Of course I was in a "Zone" when I was standing there allmost as if a surreal moment had happened and there were no boundaries between me and my baby girl only a few short inches ways behind man made things.



It was a moment that to me is and has been sealed in time. I felt her pain and wanted to somehow burden all of it . . only I quickly realized I couldn't. The Attending physitian ccame over and aparently had started to talk to us and Amy quickly keyed me in snapping me out of my trance.





She is doing much better a mere 24 hours Post-op. She is sedated and has been dropped another three percent assist on breathing. . She is now doing 97% on her own. The way it stands De-Intebation (Or removal of deep breathing assistence equipment) may happen as early as tomorrow (48Hours after installation) which is nothing short of amazing. Again risk is involved.



Because of the tube going thru the repair site it needs to come out due to irritation hampering healing effectiveness. However it also needs to remain due to soft esophegual material being a newborn. Being the connection was not made naturally no hard cartelage has had a chance to form and grow. Cartelage is what keeps the passage open and sturdy. You quickly can see the delema on if you do and or do not. Generally this part of the steps to recovery are very normal and routine and in Her case she has an upper hand being that during the long surgery it was found she had more than enough esophogual material to mae a connection without any stretching or stress of the material.



Tomorrow will be a trying day of many as I am a firm believer in "Paitence". being I have learned to not rush anything, time to me is the best medicine. This is somewhat against my own medical knowledge of letting things heal slowly for the best result. if this goes well then we are faced with a 4 week stay consisting of training the still connected portion of the intestinal tract. Also after this moment "Semi normal oral feeding can start to begin. Problem here is that babies born need their first "Feeding" Stimuli to train the brain on how to take in and absorb energy from food. This training has not happened yet and it can be a hard thing to teach without nature doing the work soon after birth. So On down the road to recovery we go with a few stops along the way. Of course I will post our findings.



Thank you all!



TMTT

(Tool Man Tim Taylor)
 
Toolman, I know you have a pile of people near you but as a father and someone who has another one coming, if you need anything at all please get ahold of me. Sometimes we need someone other than those real close to us. As of Friday I'll be off for a week so let me know if you need anything brother, I'll be there. God bless you guys, best of luck and my prayers are with you, I can't imagine being in your spot. I'm here if you need me though.
 
Wow, not quite the kind of excitement you'd hope for. She sounds like a determined little girl though and I hope she continues on this path to recovery. We're thinking about you all. Hang in there.
 
Tim, I can't imagine what your going through but it sounds like your doing very well! Remember - it's ok to break down and lean on others. If you need someone to talk to you have my cell phone # and you can call ANY time. I gave my kids an extra tight squeeze tonight. Sure glad to hear that things are going well considering the situation!
 
Tim,



Our first child was born with a breathing problem and was whisked away to the ICU within minutes of his birth and kept there for 10 days after he was born. No surgery was needed but I understand how hard it is not to be able to hold your newborn child and seeing them with tubes and IV's and the other stuff. With lots of support and prayers just like you have from your friends here, my 6 year old red-headed little buddy is great and loves riding in Daddy's truck and watching the black smoke. :cool:



Hang in there buddy. We're praying for you.



Scott
 
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